| Issue date: June 4, 2000
In this article:
Where
to start
Where
to zero in on a disease
Where
to learn to live well
Red
flags on health sites
A checklist for trustworthiness
On
the Internet, find specifics.
The Web makes
housecalls
From simple first-aid
advice to cutting-edge medical research, info on the Internet can
offer comfort, consultation and possibly even a cure. USA WEEKEND's
guide to Health Online provides a promising prognosis of finding
what you need.
At 22, Kathryn Carney was diagnosed with an "incurable" syndrome
that creates new ovarian cysts each month. By 26, Carney had been
to eight doctors, weighed 240 and was so sick that she had to quit
work. That's when she turned to the Internet. She dug up European
studies online and used them to persuade doctors to prescribe a
drug usually used to treat prostate cancer. She joined online support
groups. An e-mail service sent her motivational quotes daily. Carney
lost 90 pounds in 14 months and today shows no signs of illness.
"The Internet is still my support system," enthuses the now 30-year-old
host of Home & Garden Television's Vacation Living. Such is the
potential of health on the Web, "the most significant advance since
the printing press," says George Lundberg, the respected former
editor of the Journal of the American Medical Association, now editor
in chief at CBS' healthwatch.medscape.com.
This year, the number of people logging on for the health of it
will explode 70% to 33.5 million, says Cyber Dialogue, a research
firm. Health sites like drkoop.com and WebMD.com get nearly 3 million
visits per month, more "eyeballs" than popular magazines like Vanity
Fair have in subscribers.
Thanks to the Internet, patients come to doctors with better information
and questions. They participate more actively in health care decisions.
Online support groups and message boards quickly spread new treatment
options. Online health even is spawning a new vocabulary -- words
like "cyberhealing" andÊ"cyberchondriac." There's information for
all, whether you are new to the Internet, ready to zero in on a
deadly disease or seeking tips for a long, healthful life.
But dipping into the Web's 25,000 health sites can end up feeling
like a trans-Atlantic swim. Type "headaches" into a search engine
like Altavista, and more than 108,000 unregulated pages pop up,
including ads.
In this environment it's easy to be hurt, warns John H. Renner,
M.D., president of the National Council for Reliable Health Information.
"Accurate information is empowering," he says, but "the inaccurate
stuff is so serious that even government agencies are referring
to some of it as 'deadly.' "
Not all sites will last -- even popular drkoop.com's future was
"code blue" at press time. Still, the Internet is expected to become
the heart of consumer health -- our place to store, send and access
patient records and test results. "I can imagine a time when the
doctor can see you or access instruments about the body to do physical
testing online," predicts Tom Ferguson, M.D., author of The Ferguson
Report, the industry newsletter of online health. "If you had told
somebody in 1993 what we could do today on the Internet, they never
would have believed it."
This is your guide to the future.
Go to
top
Where to
start
Use search engines
you can't miss
Health information is available from the moment you log on. Many
Internet service providers, like America Online (AOL) and Microsoft
Network (MSN), and portals Yahoo!, Infoseek and Excite have elaborate
health categories with search engines, links, chats and message
boards. They lure eyeballs with special events: When AOL put colds
and flu info on a special site, viewership increased 700%.
Cruise the big, flashy
sites
The big kahuna health sites can be fun and informative but are
limited -- or slanted -- due to commerical sponsorships by drug
makers and other special interests. In some ways, it's hard to tell
the difference among big commercial health sites. Most have:
- a news section
- a library with reference books, frequently asked questions (FAQs),
- health articles
- communities of interest that chat or post messages
- an "ask the expert" section
- "tools" to track your own health or a child's
- e-mail newsletters
Notable biggies:
drkoop.com webmd.com
onhealth.com thriveonline.com
achoo.com intelihealth.com healthcentral.com HealthAtoZ.com
mayohealth.org discoveryhealth.com
healthwatch.medscape.com
Work the non-commercial
gateways
healthfinder.com
Don't let the fact that this site is from the U.S. government turn
you away. Surprisingly user-friendly, healthfinder categories range
from medical journals to infant, child, teen, men, women and minority
health. It's considered a top search engine for health with links
to online publications, clearinghouses, databases, Web sites, support
and self-help groups. For a guide to making decisions about lifestyles,
health care and insurance, click on one of the four "smart choices"
sections.
chid.nih.gov
Want to find articles on any health topic? CHID (Combined Health
Information Database), a bibliographic database produced by health
agencies of the U.S. government, is a small, no- nonsense search
engine that gives big results.
www.medmatrix.org
Its categories may seem dry (the site is, after all, meant for clinicians),
but Medical Matrix is a gold mine. Not only does it link to hundreds
of Internet health sites on even obscure topics, but the editors
at Medical Matrix rank sites with one to five stars. Make sure to
visit "Patient Education," with rated links to many top general
medical information sites.
noah.cuny.edu
An outstanding bilingual site (all information is available in Spanish),
it offers frequent updates and links to newsletters. Use the "Word
Search" feature, where even simple terms bring up a wealth of health
information.
Where
to zero in on a disease
Let an association explain it to you
Among the most reliable (read: most conservative) sites for researching
an illness are pages maintained by major foundations and non-profits.
Web sites of the American Cancer Society cancer.org, American Heart
Association americanheart.org, American Diabetes Association diabetes.org,
and Arthritis National Research Foundation www.curearthritis.org
have reliable links. Similar groups can be found easily through
Web portals like Yahoo! or Infoseek.
Try specific disease
sites
oncolink.com
This site from the University of Pennsylvania wins awards for a
reason: It is thorough, easy-to-use, up-to-date and a great place
to get a grip on cancer. Besides the expected disease descriptions
and FAQs, it has personal stories and hard-to-find help on handling
cancer's financial burdens and side effects (fatigue, pain).
yoursurgery.com
Not for the weak of stomach (there are photos of actual internal
organs/surgery), but anyone facing the knife for hip replacement,
Cesarean section, tonsillectomy or 30 other common procedures should
check this out. It lists symptoms, complications, post-op care and
options besides surgery. Surgeons and patients use this site as
part of the legal informed consent process.
mediconsult.com
Handy for information on any chronic condition, like diabetes, arthritis
or lupus, this site also divides information into categories for
women, men, seniors, children and caregivers. All information passes
a rigorous clinical review process before being displayed.
www.cdc.gov
Think CDC, and you might think ebola or flu stats. But this diverse
and informative site has everything public health, from back belts
and how the use of baby bottles affects tooth decay to wintertime
safety tips. Health news junkies can mainline headlines, while travelers
find vaccine updates. For eye-openers, visit "Straight Facts on
Diseases" in Morbidity and Mortality Weekly Report (MMWR).
For serious help,
get serious research
The mecca for finding state-of- the-art "hard" research is the
National Library of Medicine's Medline database: 10 million articles
from 4,000 scientific and medical journals. Info can be technical
and tough to put in context, but hang in there: Non-medicos did
80 million searches last year. To access:
- ncbi.nlm.nih.gov/PubMed/,
the National Library of Medicine's site.
- medscape.com
Click on "Medline." This is an exclusive Medscape feature that
narrows the search to articles in 270 of the most popular (and
consumer-friendly) journals.
Go
to top
Where to
learn to live well
Mental health
www.mentalhealth.org
Inform-ation for everyone from patients to policymakers, plus links
to mental health Web sites and a list of government publications.
Visit the "Kids Area" for games and kid-related mental health Web
sites.
nmha.org
Aside from the policy updates found at any advocacy site, The National
Mental Health Association offers fact sheets, pamphlets and resources
on mental health, plus discussion boards and a directory of 300
affiliated groups. Check out the valuable tool for depression screening.
onlinepsych.com
For fun, take a few of the interactive tests in the mental/emotional
health area. What career is for you? What relationship works for
you? What's your IQ?
NOTE: E-mail psychotherapy is gaining in popularity. While attractive
to people who want anonymity and convenience, the experts worry
it might be practiced by people with little psychological training.
Prevention for kids,
men, women
www.ama-assn.org
At the bottom of this wordy American Medical Association site is
a friendly consumer health section on general and family health
(including often-ignored adolescents), plus doctor and hospital
"finders." Go to "Interactive health," which has tools to personalize
your health profile or customize a fitness program.
www.4women.org
Here's a one- stop shop for female health, with an FAQ section covering
everything from birth control to hormone replacement therapy, from
lesbian health to issues for Asian women. The site offers Internet
links plus contact info for related groups, newsletters and agencies.
Also good: acog.org, by the American College of Obstetricians and
Gynecologists.
pedsnet.org
This pediatrician-run effort gets good word-of-mouth on parenting
message boards, thanks to its focus on child wellness: news and
health alerts, food safety info and immunization trackers. An original
library of 600 "ask the expert" Q&As plus well-researched articles
address issues such as: Will giving my 5-year-old the chicken pox
vaccine harm my newborn?
familydoctor.org
Check out the self-care flowcharts that suggest possible diagnoses
and recommend treatments/action for all kinds of conditions. Plus,
a long list of handouts on non-illness health issues such as Air
Travel Health Tips.
Alternative medicine
It's tough to tell ads from legitimate information when it comes
to alternative medicine. Try these sites.
www.herbs.org
Adorned with flowers, this site from the Herb Research Foundation
boasts a library of 150,000 articles, plus details on herb production
and retailing. Visit "Online Greenpapers" for synopses of what's
known about such herbs and minerals as echinacea and zinc.
www.seanet.com/~vettf/Primer.htm
Billed as "The Entirely On-Line Alt[ernative] Med[icine] Primer,"
this simple site from the National Council on Reliable Health Information
site links to mainstream and scientific articles on general and
specific therapies.
Drug deals
More than 9.5 million prescriptions were filled over the Internet
last year, reports Cyber Dialogue. Many health sites link to sellers
such as Planetrx.com, DrugEmporium.com, drugstore.com, vitalRx.com,
yesrx.com and prioritypharmacy.com. The Web also offers hundreds
of sites to buy drugs from overseas pharmacies (30 tablets of Amoxicillin
costs $25 here vs. $12 for 100 tablets overseas, according to one
service). Yes, it's legal to buy drugs overseas for personal use
if they're approved for use here and you have a valid prescription.
Caution: Some overseas sites might send counterfeit, addictive,
out-of-date or poorly labeled medication, leaving an injured patient
with no recourse.
www.fda.gov/medwatch/safety.htm
After troubles with the diabetes drug Rezulin and the diet drugs
Fen/Phen, consumers want to be on top of the latest drug safety
information. This is the site to find out about recalls, market
withdrawals, labeling changes and other safety notifications ordered
by the FDA.
www.centerwatch.com
A listing of 41,000 industry- and government-sponsored clinical
trials, plus drugs recently approved by the FDA.
Nutrition and fitness
spectre.ag.uiuc.edu/~food-lab/nat
The Nutrition Analysis Tool lets you input the foods you eat, then
analyzes them for nutrition value.
netsweat.com
Wonderful fitness features include FAQs for those who teach fitness
and links that include indoor,Êoutdoor and endurance sports. Click
on "Ask A Personal Trainer" for confidential e-mail advice.
A mother's computer cure
When Aleah Jones, above, was diagnosed with Attention Deficit Disorder
at age 6, the doctor gave her mom, Rhandi, a pamphlet and "a list
of 50,000 books. I didn't know where to start." The Stonington,
Conn., mother took a class about ADD at the community center, but
wasn't impressed.
Six months ago, she got a computer and promptly found ADD research,
information on ADD drugs and medications to deal with the side effects
of ADD drugs. One of the most helpful elements: message boards for
parents of ADD kids. "The parents know all the Web sites, know what
research is being done, know the best books and the laws for getting
help at school," says Rhandi, 30. Talking with the Internet community
helped her separate out ADD from what she calls an adolescent's
"middle school attitude." Thanks to this information, Aleah, now
10, is doing well at home and in class.
Still, Rhandi logs on every morning to check for any ADD news.
Where to find a support group: Many major health sites have "communities"
with chat/support groups and message boards where you post a question
or respond to others within a specific topic. Some of the most active
health support groups are on the "Usenet" -- a global bulletin board
of thousands of different topics. To find a specific health newsgroup:
If you're on AOL, type in keyword: newsgroups
Go to deja.com and search "Discussions" for health terms ("Crohn's
disease" or "Alzheimer's")
Go to altavista.com, search "discussion groups"
Go to tile.net/news/ for a directory of Usenet newsgroups
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Red flags
on health sites
Diagnoses.
Doctors can practice medicine only in states where they
have a license, so diagnosing online (if the patient is
out of state) is prohibited. Doctors can give general information
and may suggest questions to ask your own physician.
Testimonials.
Personal anecdotes can be made up and are hard to verify.
Look instead for clinical studies from medical or scientific
journals with authors from legitimate institutions.
Products
that claim to cure or treat a wide variety of illnesses.
The FDA, for example, found a site for emu oil claiming
to cure cancer, arthritis, prostate problems and gangrene,
among others.
The word
"natural." Often used in health fraud as an attention-grabber;
it doesn't mean it is safer. Among legitimate drug products,
says Shelly Maifarth, a compliance officer and health fraud
coordinator for FDA's Denver district office, 60% of over-the-counter
drugs and 25% of prescription drugs are based on natural
ingredients.
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On the Internet,
specifics, any time.
Need:
Talk to a doctor at 3 a.m.
Site:
americasdoctor.com
Need:
Figure out what shots you need for summer travel
Site:
www.cdc.gov/travel/destinat.htm
Need:
Get rankings of hospitals, doctors and nursing homes
Site:
healthgrades.com
Need:
Learn tactics to quit smoking
Site:
lungusa.org/partner/quit/index.html
Need:
See if your child may be experimenting with drugs
Site:
drugfreeamerica.org
Need:
Personalize the type of health news you get
Site:
healthscout.com
Need:
Take tests that show your expected life span
Site:
realage.com
Need:
Learn possible side effects of your prescription drugs
Site:
mayohealth.org/usp/di/uspA-AM.htm
Need:
Plan your fitness program
Site:
www.ama-assn.org/consumer/interact.htm
Can you trust a site's info? A checklist.
Health information on the Web is largely unregulated. Many sites say they
adhere to standards set by the Geneva-based Health On the Net Foundation
(HON), but compliance is voluntary and not enforced. If health information
seems questionable, check out:
-- Who wrote the information -- a journalist, doctor or salesperson? Who pays
their salary?
-- Is a university or other institution connected to the site? Could you find
the institution?
-- Who did the research? Studies should be attributed to publication, author
and date. Personal anecdotes can be made up and are hard to verify.
-- Who owns and finances the site? Check out the Ê"about us" link. Are they
trying to sell you something?
-- How often is it updated? Info from 1997 is probably outdated, notes Jay
Schneider, Ph.D., author of "The Doctor's Always In -- A Guide to 1,100 Best
Health and Medical Information Sites on the Internet."
-- Are links current and reliable? Unedited links, or links that come up "not
available" can indicate a less maintained, less reliable, site.
-- Who's in the "ask the expert" section? Does the expert answer questions or
only oversee Q&A?
-- Are diagnoses being made? Doctors can only practice medicine in states
where they have a license, so diagnosing online (if the patient is out of
state) is prohibited. Doctors can give general information and may suggest
questions to ask your own physician.
-- Does it tout a product that claims to cure or treat a wide variety of
illnesses? There are no cure-alls.
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