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Issue Date: July 30, 2006

In this article:
Online extra: More remembrances
Decade of giving and the foundation's impact

COVER STORY


A Super Legacy

Even today, the efforts of Christopher and Dana Reeve continue to help others. As their foundation turns 10, we share personal memories from those who knew them.

COVER: Christopher and Dana Reeve
"When we spoke after the accident, Chris told me, 'I really sense being on a journey.' "
--Barbara Walters

For more on stem cell research, Superman tags and Team Reeve recruitment for the 2006 New York City Marathon christopherreeve.org.

Ten years ago, Christopher Reeve lived the life of the very famous. In 1996, he learned he'd get his star on the Hollywood Walk of Fame. He appeared on the cover of "Time" that year, and he launched his own foundation. For certain, he was a star -- a star with a profound sense of purpose. On May 27, 1995, he had shattered two vertebrae in his spinal cord in a horse riding accident. He couldn't move from the neck down or breathe on his own. At first, he wanted to die.

Then he decided to live. Having played Superman, Reeve leveraged his fame to bring the world's attention to spinal cord injuries. In the "Time" story, he conveyed how advancements may one day lead him to live a normal life. And the Christopher Reeve Foundation -- launched by Reeve and his wife, Dana, a singer and tireless partner in his cause -- remains the center of hope for paralysis victims worldwide.

Today, both are gone. Christopher Reeve, 52, died in October 2004 after suffering cardiac arrest brought on by an infection. Dana Reeve, 44, a non-smoker, died this past March of lung cancer. The foundation, however, continues to move forward (see below).

As a tribute to the Reeves' legacy, USA WEEKEND Magazine spoke with those who knew them well. In their recollections, it's clear that the Reeves touched so many lives, not because they were super-human, but because they were so compellingly human.

Barbara Walters, co-host of "The View"
After his accident, everyone wanted to interview Chris. I ended up doing it. When we spoke just five months after the accident, Chris told me that he was beyond the "Why me?" stage. "I really sense being on a journey," he said. I became close to Chris and Dana. I went over to their house many times. I'll always remember how excited Chris was after they let him take his [breathing] tube out. We were making coffee at the time. "I can actually 'smell the coffee' now!" he said. It was so sweet. I also saw what Dana went through. It took three hours just to get Chris washed up and ready to be put in the chair.

After he died, she was supposed to sing on "The View," but she canceled. Then we got the news about her illness. We e-mailed each other a lot after that. I was under the impression that she was getting better. Then she was gone. I was devastated.

Peter Kiernan, board chairman of Reeve's foundation
I knew Chris and Dana long before they met. When we were growing up, Chris and I would play against each other in hockey. I met Dana when she was going to Middlebury College in Vermont. My brother was playing McMurphy, the lead in "One Flew Over the Cuckoo's Nest," the character Jack Nicholson played in the film. Dana was playing Nurse Ratched, who, you may know, is a very cold, awful character. Dana had to be a great actress to pull that off. She was so warm and very funny.

Years later, we reconnected after the accident. By now, I was involved with a charity for the disabled. Chris put up his bicycle for an auction we were running, and I bid on it and won it. I took the bike and sent it back to him with a note saying, "You're going to walk again, so you'll be needing this." Then, the next year, he donated the bike again! I bought it again and sent it back to him. This became a running joke every year. He'd even get his business friends to bid up the price.

Mark Messier, former star with the New York Rangers and six-time Stanley Cup champion
I met Chris before his accident. I would often see him at Madison Square Garden. He was a huge hockey fan. After his accident, I went to see him in the hospital. Dana and Will, their son, were also there. Will would be sitting on his lap, and you could just feel how badly Chris wanted to hug him.

Will plays hockey now. After Chris died, Dana would bring him to the rink and watch practice. We would have some time after to work on some of his skills. We all really enjoyed these times. When Dana fell ill, everybody was in shock. Then she sang at my retirement ceremony at the Garden on Jan. 12 this year. It was a surprise and honor. You could just feel the energy from the crowd, it was so emotionally powerful. After the fact, I learned that she had changed her chemotherapy schedule to perform at my celebration, which made her commitment to be there all the more powerful.

Actor Philip Seymour Hoffman, who won the 2006 Best Actor Oscar for Capote
Dana and I were non-equity actors in the Williamstown Theatre Festival in the late 1980s. It was a very special time in her life. She and Chris had been dating for a while by then. But that could be intimidating. He was already this famous actor who had done "Superman," and we didn't even have agents. But she broke down all of that by being so talented and fun and supportive. She made everyone feel like a best friend. Even after the accident, the two of them still came to the plays I'd do to show their support. It was very touching.

John McDonald, M.D., Ph.D., who directs the spinal cord injury program at Baltimore's Kennedy Krieger Institute, and physician to Christopher Reeve
When I met him in 1999, Chris seemed to have lost some hope. That may surprise people now, because of the relentless optimism that he became known for. But there was very little of that then. I simply told him this: "I can help you."

That's what he really needed to hear. It had an immediate, positive effect on his spirit. I explained that, with exercise and treatment, we can ward off the accelerated aging process that happens in these cases. We put him on a bike and set up treatment so that electrodes on the skin could activate his nerve endings, allowing his muscles to contract. He started building up lots of hope then.

We soon became friends and worked together for his cause. When we lobbied for stem-cell research, I became the student and he became the mentor. I mean, Chris really knew his politics -- and the work excited him. It made him feel alive and full of purpose. It gave him a sense of empowerment. When he regained ability to move, it was like Superman walking again. When he started lobbying, it was like Superman was flying again.

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Online extra: Expanded interviews and remembrances

"I asked him once whether he takes delight in 'tweaking' people. He told me, 'It is my favorite thing ...' "

Paula Zahn of CNN's "Paula Zahn Now"
"I met Chris well before his accident. Actually, when he was doing 'Superman,' I interviewed him at a press junket. After the accident, we spoke a number of times and I became close to him and Dana and the people at the foundation. I was always touched that he always had a wonderful sense of humor about what he was going through. A year before he died, he told me he dreamed of doing all the things that a 51-year-old man dreams about. We were talking about sex, of course. Then the phone rang, and he said, 'That's God calling. He's ticked about my dreams.' But he had many, many vivid dreams. He told me he often dreamed of swimming in a meet -- and winning. The time that he did that Super Bowl ad -- the controversial one that showed him standing -- it was so liberating for him. He always told me that he was going to walk again.

"His lobbying for stem-cell research also generated controversy, and he loved that, too. I asked him once whether he takes delight in "tweaking" people. He told me, 'It is my favorite thing ...' He wanted to shake things up. He was willing to take the heat from those who criticised him for raising false hopes.

"After Chris died, I did interviews with Dana and we even discussed putting a book together. Then, she lost her mom shortly after she lost Chris. Then she was diagnosed with her cancer. I never saw someone who could be so strong and positive in light of everything she went through. She told me, 'Either I can sit here and wallow with self-pity or I can turn what we've gone through into something positive.' Clearly, she was talking about the foundation. And she was no figurehead there either. She insisted upon going over every single grant proposal. She dug into all the minutia that goes into running a foundation and wanted to know all about the latest in science, too."

Mandy Patinkin, star of "Criminal Minds" on CBS and longtime Broadway actor
Chris and I went to Julliard together. What a great time to be there: Robin Williams was Chris' roommate. They were ahead of me; I was in the same class as William Hurt. Kevin Kline was a few years ahead of us. Robin used to do his routines in the bathroom and break all of us up. After we graduated and pursued our careers, we remained in touch. Chris and I did "The Winter's Tale" for Joseph Papp's Shakespeare Festival and we'd go home on the subway together. Now, keep in mind that, at this point, he had already done "Superman" But he'd get on the subway and nobody would bother him. He loved that. "I like blending in," he'd tell me.

After his accident, I was always moved by his presence, how he was able to offer forgiveness for all the things that he was put through in this world. I brought my children to see him once. Why not? It was bringing them to see one of the greatest leaders of our time. He took his pain and his passion, combined it with his business sense and political and media savvy, and used it to help heal the world.

I got to know Dana better after Chris died. We both took part in Chris' last creation, "Everyone's Hero," which is coming out in September. After we did this, Dana got sick. In the end, she preferred to send group e-mails to lots of people, assuring all of us that she was going to be just fine. She gave all the details about how she was recovering. She told us that there was balance and fairness in this world and she was going to be just fine.

Joe Torre, manager of the New York Yankees
Chris and Dana came into the Yankees clubhouse one day with Will. I had never met them before. I was immediately impressed with Chris. There was always a look of purpose in his eyes -- the energy he conveyed was riveting. And he was excited to be there, to be in the clubhouse at Yankee Stadium, with all the history there. I remained in touch with the family, and made myself available for whatever they wanted for the foundation. Dana and I both attended the special opening for Billy Crystal's "700 Sundays." We went to Tavern on the Green for the post-show party and she wanted me to take part in the animated project, "Everyone's Hero." It's an animated film about a boy who travels 1,000 miles to help the Yankees win the World Series. It's a movie about never giving up, and she so dearly wanted me to do a voice part. I told her I'd do it that very night. No questions asked. She had such a positive outlook about everything that she did, that you could never say no.

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A Decade of Giving

The Christopher Reeve Foundation's efforts have resulted in more than $65 million in research grants awarded, and donations have only increased since the Reeves' deaths. "The general public has been moved by what has happened," says Kathy Lewis, foundation CEO and president. "The mission very much goes on."

Among other efforts, the foundation is now focused on:

Spreading its NeuroRecovery Network centers. At the centers, patients use activity-based rehabilitation therapy to improve health indicators, such as blood pressure. With five centers now open and three more expected to launch before the end of the year, the foundation is deploying this therapy nationwide.

Continuing "Quality of Life" grants. Dana Reeve wanted to improve everyday life for people living with paralysis. The foundation has awarded more than$8 million in funding since 1999 for scholarships for adaptive sports,outdoor programs and assistance dog training centers; support groups; advocacy campaigns;websites that promote self-esteem for children who use wheelchairs; and other needs.

Remaining in the public light. Last July, with support from Warner Bros. Entertainment and DC Comics, the Christopher Reeve Foundation launched Superman Tags -- dog tags that are engraved with the Superman S-Shield and the foundation's new tag line,"Go Forward." All proceeds from tag sales ($10 for two) benefit the foundation. Many Hollywood celebrities, such as the stars from "Superman Returns," have been spotted wearing them. Reeve's foundation has sold 80,000 tags to date, raising a total of $800,000.

For more on stem cell research, Superman tags and Team Reeve recruitment for the 2006 New York City Marathon christopherreeve.org.

Cover photograph by Mary Ellen Mark


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